Tuesday, January 08, 2008

Eyes and ears and mouth and nose

Head, shoulders, knees and toes, knees and toes
Head, shoulders, knees and toes, knees and toes
and eyes and ears and mouth and nose,
Head, shoulders, knees and toes, knees and toes..........

Ian failed his latest hearing test. Another doctor. More tests.

*sigh*

Annie went to a second gathering of Parents Who Know All the Doctors in the Yellow Pages by Name Because Their Child was Picked to Shoulder Any and All Extra Maladies that Were Left Lying Around While the Rest of the Kids Were Hogging All the Healthy Genes last night before picking me up from the airport. She got a little comfort from the others there who said that it took numerous hearing tests until their child passed.

But his heart is doing great, said the latest cardiologist we visited last week.

Woo hoo...

10 comments:

Elbog said...

I do know how you feel. All I want to tell you is that you'll just have to wait. Emma's hearing tests were inconclusive, and often inappropriate for her. Not long after the last one, we were sitting in a Wendy's. A woman was talking to a kid, about 10 feet away, about candy. Emma perks up, makes the sign for candy. So know we know she can hear alright, right?
She just put her first signing sentence together, a few days ago. "I love ice cream." Thought it was gonna be "I love you," but no cigar. It was still cool.
Ya gotta keep the faith. Faith in things unseen, unheard. Pray for comprehension - yours and Ian's. Pray for communication, and don't expect it the way you necessarily want it. Sermonette over.

Terri said...

man, it's so hard to go through stuff with your kids. and it sounds like you're living in kid-doctor hell. wish i could make it better. i'm here listening fiercely for what it's worth.

bella said...

Talk about holding both.
This is good news about the heart. And why does this not surprise me? He is valiant of heart, that little guy.
The hearing test? It sounds mostly like the discouragement of more doctors, tests, trying to find him good care and let him be at the same time.
I'm sorry its so hard.

Leah said...

Yes, it's very common to have problems with the hearing tests. The most common problem is very simple...fluid in the ears. I know an excellent ENT of course. LOL Angela DOES have a moderate bilateral high frequency hearing loss. (that means it's a moderate loss affecting both ears, and she misses high frequency sounds which would include those in the speech tones.) Lucky for her, I've been a sign language interpreter/cued language transliterator for 20 years so for me hearing aids was no big deal.

If the problem is "just fluid" that's a pretty easy fix. (tubes in the ears) which is a 10 minute precedure under anesthesia. Keep in mind that my sense of what is scary and what isn't has gotten a bit warped over the years. I time Angela's surgeries by how many cups of coffee or how many meals I can get in during the wait time. At Minneapolis Childrens, to have ear tubes put in you don't even have enough time to run up to Cafe Amore to get a cup of coffee! It almost takes longer to put them out than it does to put the tubes in. Then while their in surgery they can retest his hearing under sedation AFTER the fluid is cleaned out to see if there is a difference.

HANG IN THERE

Kim Ayres said...

"pardon?"

Tom said...

elbog: (what is "elbog" anyway) It is very cool, your daughter being able to put sign sentences.

Comprehension and communication - often such strange bedfellows. Appreciate it, man.

Terri: 'preciate it.

Isabel: It's kind of how the guy who mops the floor in the restaurant must feel... mop the floor, muddy shoes, mop the floor again, more muddy shoes... never ends.

Leah: Trying to hang in there.. wears a person down, as you well know. I'll talk to Annie and see if she got a name for the next doctor on our ever growing list. I'll let you know if we need your connection (s). Thanks.

Kim: :)

Laurie said...

Can't really help here.

It's good that Annie is meeting with other moms in the "club". It helps.

Just know that you're not alone. Neither is Ian.

Tom said...

Laurie: Annie has really enjoyed the two gathering so far, and wants me to go... we'll see. Thanks.

Tammy and Parker said...

We belong to the same club. sigh.

Tom said...

Tammy/Parker: I thought clubs were supposed to be fun? :)